Sickle Cell Community, a group founded for the control of Sickle Cell Disease, SCD, in Kano State, North west Nigeria has said that about 150,000 infants die of the ailment annually in Nigeria, representing 8% of infant mortality rate in the country.
A member of the Board of Trustees of the group, Shema’u Adam Imam, stated this at the launch of the Sickle Cell Community Trust Fund to support people living with Sickle Cell Disorder, held in Kano.
She said Nigeria has the highest burden of SCD in the world and the country is also the top sickle cell endemic country in Africa.
Imam explained that the Trust Fund, established in collaboration with Community Health Research Initiative, CHRI, and Centre for Sustainable Development and Communications Initiative, CSDCI, was a financing mechanism to support the less privileged persons living with sickle cell.
She noted that the fund would cushion the soaring economic condition of parents of the sickle cell patients, especially in purchasing drugs and payment of screening and investigations.
Shemau Adam maintained that poor availability of resources to the public health facilities, welfare sectors and economic inflation are seriously hampering access to appropriate medical and social services.